Practical example and current challenges
- Chronic heart failure is a chronic disease that currently affects 15 million patients in Europe. This disease is associated with a high cost burden for the health care system and society, as regular treatments are very expensive. The aim is therefore to increase the effectiveness of care, i.e. to achieve better treatment results and a higher quality of life for patients suffering from this disease, while at the same time reducing costs.
- Value-based healthcare (or benefit-oriented healthcare) has not been consistently implemented to date – due to static reimbursement schemes and the complexities of automated and scalable data access.
- The use case establishes a value-based data platform that supports the management of patients with chronic heart failure. It captures patient data, costs and other data, and presents this data in several disease management dashboards. The approach strives to fewer hospital re-admissions, lower mortality rates, cost reduction and improved patient and hospital staff well-being.
What added value does the "GAIA-X project" offer?
- GAIA-X enables a GDPR-compliant data platform, as a basis to build health management applications in line with medical device regulations (EU MDR). This should allow building platforms at scale that interface between the professional (hospital) and private (patient) domain.
- The management of chronic heart failure requires the combination of health record data with device measurements and feedback from the patient at home. GAIA-X can provide the secure infrastructure to enable such data exchange at a national and even European scale, to reduce the costs and complexity of the current subscale pilots and initiatives.
- Standards for clinical outcomes (ICHOM) and integrations based on the latest standards (such as "Fast Healthcare Interoperability Resources" (FHIR)) make the solution future-proof.
- Bert Verdonck – Philips
- Ruben Osnabrugge – Philips